Sjogrens Advocate - a user's guide
Updated: May 12, 2020
The Sjogrens Advocate Navigation Guide
For Newcomers and everyone else
Meet Dr. Sarah Schafer. My experience as a doctor-patient lends a unique dual perspective to help patients and clinicians achieve timely diagnosis and comprehensive care. Start your exploration with About and Meet Dr. Schafer.
The footer is a hidden gem. Though it may seem remote, remember that the footer enables quick access to all the key components at a glance. This could be a real timesaver.
Visit the sitemap to see all page topics at a glance: Each page of the website has a link under the sitemap. This is a useful tool to find topics quickly without combing through pages.
Learn about the purpose of Citations and Key Articles and the difference between the two. See blog posts What are all those numbers in parentheses? (4-25-19) and Working with PCPs – Key Articles (10-23-19). Scroll to the Notes at the bottom of the Key Articles blog post to learn about Citations vs. Key Articles.
Take a brief tour of Key Topics. Some sections, such as diagnosis, are well developed. Other Key topics such as the many aspects of ongoing care, are yet to be written.
How to use the search bar from any page: Search a particular topic or word by typing it into the beige search bar at the top of each page. NOTE: Wix recently installed a new search engine, which seems to limit search results to the blog and main pages. Not ideal! Sometimes a google search will help you find what you are looking for.
Web pages and handouts are updated on a routine basis. The most recent revision date is noted at the bottom of each page.
Blog posts cover a wide range of strategic topics for both patients and clinicians to achieve timely diagnosis and comprehensive care. Some posts are limited informational content. Others include opinions and commentary, or a mix of both.
Subscribers are notified of new blog posts and website pages via email. If you subscribe, expect 2-3 emails per month. You must routinely click on the emails and link to the site, or Wix will automatically unsubscribe you!
Why Sjogrens Advocate? Isn’t there already a good website for Sjogren’s?
Yes, there is one. The website of the Sjogren’s Foundation (SF). I didn’t write the word “one” accidentally. Mainstream medical websites (e.g., ACR and Mayo) do not adequately reflect the current understanding of Sjogren’s as a serious systemic disease. This is misleading to clinicians and patients alike.
Sjogrens Advocate provides specific self-advocacy tools and basic PCP education. This website is independent, and the contents are entirely my responsibility. The scope of my work is a sliver compared to the broad and impactful work of the SF. For more details about the unique role of Sjogrens Advocate, please read The Real Reason for Sjogrens Advocate blog post (1-22-19).
I highly recommend that you use Sjogrens Advocate in conjunction with Sjogren’s Foundation (www.sjogrens.org). I will highlight some of my favorite features and other Sjogren’s Foundation resources in the next blog post.