Treatment and Monitoring

Link to PCP Letter

PCPs play a key role in both timely diagnosis and ongoing care, especially with an increasing shortage of rheumatologists.   Click here for a letter that patients can give to PCPs. For more information, see the Blog posts, "Working with PCPs I-III", October 2019..                        

Page under construction

Introduction Only

This section will include pages about Ongoing Care, Lifestyle and Treatment.

 

An introduction to these topics:

ONGOING CARE:   Everyone with Sjogren’s needs to work with a core health care team:  a rheumatologist, an ophthalmologist and a dentist.  Each provider should be familiar with the special needs of Sjogren’s patients.  This includes monitoring for progression, complications and co-morbidities (See Newly diagnosed and Sjogren's-Another Look)

 A PCP, and for women, a gynecologist, also play a key role in Sjogren’s  health care.  Many patients need referrals to non-rheumatology specialists.

 LIFESTYLE:  This section will discuss diet, exercise, sleep, and other things that you can do to support your health.

TREATMENT:  I will focus on how to think about treatment choices rather than provide detailed information about individual treatments.  While I will discuss general concepts, it is beyond the scope of this website- and my expertise- to discuss in detail the indications, risks and benefits of various treatment options.  

Every Sjogren's patient is unique.  Treatment (western medical and otherwise) should be customized to individual needs.  These needs will change over time. 

 

CPGs: A good place to start 

 

Please share these Clinical Practice Guidelines (CPGs) with your health care professionals.  I recommend printing them out and taking them in to the appropriate provider:  Oral to your dentist, Ocular to your eye doctor and Systemic to your rheumatologist and PCP.  

Links to treatment guidelines

http://www.sjogrens.org/files/research/OralCPG.pdf

http://www.sjogrens.org/files/research/OcularCPG.pdf
 

http://www.sjogrens.org/files/research/CPGSystemic.pdf

This website and blog are to be used for general information only.  The content is not intended to be used for individual medical advice.  Please consult with your clinician for all decisions about your health care.

Updated  10-25-19