Promoting optimal care for Sjogren's, a common, serious, systemic disease.
VIDEOS
Exploring Sjogren's by the Sjogren's Foundation
Videos 1 and 2 of the Season 1 series are a must-see for newly diagnosed patients and their friends and family. I highly recommend watching these.
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Exploring Sjogren's: Fatigue And Sjogren's
This video makes some important points, but fails to mention that abnormal autonomic nervous system control of heart rate and blood pressure (dysautonomia) often contributes to Sjogren's fatigue, brain fog, lightheadedness, and exercise intolerance. If you have dysautonomia that impacts your heart rate and blood pressure, that must be addressed in order to get much benefit from exercise. For details about how to exercise safely and successfully with Sjogren's fatigue, please see EXERCISE HELPS SJOGREN'S - HERE'S HOW TO DO IT SAFELY.
What Is Sjogren's Syndrome? by Sue Masterson, PhD
This beautiful, 45-second video is useful for showing friends and family that Sjogren's disease is more than just dryness. They might be more inclined to watch this short introduction to Sjogren's rather than the longer, 10-minute video, "Exploring Sjogren's" above. The average viewer will not care if the phrase "Sjogren's syndrome" or the more modern phrase "Sjogren's disease" is used.
This video illustrates that an immune attack on epithelial cells causes damage in Sjogren's disease. Keep in mind that a 45-second video cannot capture the entire picture. Clinicians must always look out for systemic involvement, which can harm organs, nerves, and more when other cell types are attacked.
Sjogren's Self-Care by Dr. Elizabeth Price (UK)
Reviews eye and oral care and explains the reasons behind the recommendations based on the disease process. Discusses the importance of fitness, with a few basic recommendations. Excellent Q and A, although I disagree with her statement that neuropathy is uncommon. Neuropathy, especially small fiber neuropathy, and autonomic disorders (DYSAUTONOMIA / POTS) are common but under-diagnosed. Go elsewhere to learn about POTS; in my opinion her comments about POTS were not very helpful.
Small Fiber Neuropathy (SFN) by Dr. Ann Oaklander
Dr. Oaklander, a premier expert on this common condition in Sjogren's patients, explains SFN in this video.
Fibromyalgia by Dr. Khosro Farhad
"Fibromyalgia" in Sjogren's may be caused by SFN. Dr. Farhad's video is short and explains why this is the case.
A wonderful, practical, 30-minute video about dry eye disease.
Note: The presenter states that dry eye disease does not result in blindness, however, blindness is a rare but serious outcome that has been documented in severe cases of Sjogren's dry eye.
Updated 06-21-2023