Promoting optimal care for Sjogren's, a common, serious, systemic disease.
MY PUBLICATIONS

Sjogren's Foundation newsletter, "The Moisture Seekers"
Caring for others-and yourself-while living on the edge (2011)
American College of Rheumatology newsletter, "The Rheumatologist"
Speak Out Rheum: Under The Radar (2013)
Please note: I quoted an unrealistically low number for the prevalence of systemic manifestations in this article because, at the time of publication, the actual prevalence of systemic manifestations was just starting to be understood.
Over the past decade, it has become clear that Sjogren's is always systemic and that serious, and occasionally life-threatening manifestations may occur. Common systemic features often remain undiagnosed, including lung disease, autonomic disorders and neuropathies.
Many journal articles still quote unrealistically low percentages of the people impacted with systemic manifestations (25-40%). The numbers are trending upward, but rarely reflect the undeniable evidence of the systemic nature of the disease (38).
See the SJOGREN'S IS MORE THAN "JUST SICCA" page for more information.
Updated 06-14-2023