Links to Sjogren's-related publications by Sarah Schafer, MD and Sjogren's patient

Articles published in Sjogren's Foundation newsletters and blog

Caring for others-and yourself-while living on the edge  (2011)

How to talk to your family about Sjogren's  (2014)

Sjogren's vs sicca syndrome (2014)

Why doesn't my doctor understand Sjogren's?  (2017)

Speak out rheum: Under the Radar

Comments about the "Under the Radar" article:

This article was published in The Rheumatologist, a newsletter of the American College of Rheumatology, 2013. At time I wrote this article, the actual prevalence of systemic manifestations was just starting to be understood. I quoted an unrealistically low number for this. Over the past decade, it is become clear that Sjogren's is always systemic and that serious complications are much more common then previously realized. Common systemic features often remain undiagnosed, including  lung disease and neuropathies.


Many journal articles still quote unrealistically low percentages of the people impacted with systemic manifestations (25-40%). The numbers keep trending upward, but still do not reflect the undeniable evidence of the systemic nature of the disease. (38)

Updated 04-02-2022