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PRINTABLE HANDOUTS FOR CLINICIANS

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This page lists key handouts you can share with rheumatologists and other clinicians to advocate for better care. 

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Please read the HANDOUTS FOR CLINICIANS page to learn how to choose and share Sjogren's educational material with your clinicians.

Handouts explaining that Sjogren’s is a serious, systemic disease, never just dryness.

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  • The Sjogren's Is More Than "Just Sicca" handout and User Guide
    Shows how we know, based on scientific evidence, that Sjogren's is a serious, multi-system disease and never limited to sicca. The link to the handout is on the User Guide. Please read the User Guide carefully to understand how to use the handout effectively.​​

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  • Sjogren's Elevator Pitch Handout
    Share with family, friends, and clinicians who may not be familiar with Sjogren's disease. Fill in the diagram to show how Sjogren's impacts you. Have extra copies on hand to share with urgent care providers. 

Handouts for Diagnosis   

 

Handouts to Counter Myths About Sjogren's

Handouts for Autonomic Disorders (Dysautonomia)

Please see the DYSAUTONOMIA / POTS page.

Handouts Describing the Patient Experience             

Clinical Practice Guidelines (CPGs)

  • Sjogren's Systemic Clinical Practice Guidelines (Systemic CPGs)
    Every rheumatologist and PCP should be given a copy of the Systemic CPGs. These CPGs cover treatment of musculoskeletal pain (joint and muscle pain) and fatigue. They also have a special section that reviews the use of biological therapies such as rituximab. Offer the journal article (next item) with the Systemic CPGs to increase the likelihood that these are taken seriously. 

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Journal article explaining details of Sjogren's Systemic CPGs
Open access (free) journal article that explains the details of the Systemic CPGs, who made them and the process of creating them. Print out the PDF version to share.  

 

  • Sjogren's Pulmonary Clinical Practice Guidelines (Pulmonary CPGs)  
    Every rheumatologist, pulmonologist, and PCP should be given a copy of the pulmonary , along with the journal article (next item), which provides details of how these guidelines were developed. The first page of the summary provides an excellent overview of Sjogren's lung disease. It documents the very high rates of lung disease even in asymptomatic patients. It states the importance of evaluating Sjogren's patients with chronic cough for lung disease.

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Journal article explaining details of Sjogren's Pulmonary Clinical Practice Guidelines

Open access (free) journal article that details screening, evaluation, and treatment of Sjogren's lung disease.​

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Updated 07-27-2025

​© 2018 Sjogren’s Advocate. All rights reserved. 

All content on Sjogren's Advocate is the intellectual property of Dr. Sarah Schafer.

Prior permission and proper attribution are required for educational or commercial use.

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Patients may use the information on Sjogren's Advocate for personal advocacy.

The information on this website is intended for general knowledge and should not be taken as medical advice.

Always consult with your healthcare provider regarding your specific condition and treatment options.

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