Join these groups to share ideas, information and resources
Support groups can help you feel connected to the broader Sjogren's community. However, please remember that they do not substitute for medical advice.  Please use your own  judgement when deciding what is useful to you. Overall, I find the participants to be wise and generous. They continue to inspire me to work on Sjogren's Advocate. 

Smart Patients

 Large numbers of newly diagnosed patients and more seasoned patients participate in this site. Most patients are based in the U.S. but three are members from all over the world.
The main moderator, Robin, is not a Sjogren's patient, but has a deep understanding of chronic illness and experience with patient advocacy.  She often posts links to pertinent articles and other resources on the site.  
Robin has administered patient health groups on line since 1997, first as a volunteer and now as the coordinator of the online communities at Smart Patients. She says, "The Sjogren's community has been a joy ever since it started. It quickly became apparent patients were eager to share experiences and learn more about this condition which the medical community has neglected for so long."

Free membership is required to join the community and its private discussions.


SSL email list

Long standing Sjogren's discussion-and resources-created by David Dryden, a fellow Sjogren's patient.  

Local support groups, in-person and online.

These can be particularly useful for local referrals and resources. For more information, contact the Sjogren's Foundation or see

Updated 08-15-2022