Support Groups

Join these groups to share ideas, information and resources
They can help you feel connected to the broader Sjogren's community.  However, please remember that they do not substitute for medical advice.  Please use your own  judgement when deciding what is useful to you.  Overall, I find the participants to be wise and generous. They continue to inspire me to work on Sjogren's Advocate. 

Smart Patients   www.smartpatients.com/sjogrens

A fairly new group, with robust discussion. Large numbers of newly diagnosed patients participate in this site.  Our wonderful moderator, Robin, is not a Sjogren's patient, but has a deep understanding of chronic illness and experience with patient advocacy.  She often posts links to pertinent articles and other resources on the site.  
Robin has administered patient health groups on line since 1997, first as a volunteer and now as the coordinator of the online communities at Smart Patients. She says, "The Sjogren's community has been a joy ever since it started. It quickly became apparent patients were eager to share experiences and learn more about this condition which the medical community has neglected for so long."

Free membership is required to join the community and its private discussions.

 

SSL email list

http://www.dry.org/ssl.html

Long standing Sjogren's discussion-and resources-created by David Dryden, a fellow Sjogren's patient.  


Local support groups, in-person and online.

These can be particularly useful for local referrals and resources. For more information, contact the Sjogren's Foundation.

  

Updated 1-12-21

I welcome comments and questions but please do not write to me asking for personal medical advice. This website is for education and information purposes only and does not substitute for medical diagnosis and treatment. Please consult with your clinician about your medical care.   

Sjogren’s Advocate is completely independent of the Sjogren’s Foundation. I am solely responsible for the content herein.