Join these groups to share ideas, information and resources.
They can help you feel connected to the broader Sjogren's community. However, please remember that they do not substitute for medical advice. Please use your own judgement when deciding what is useful to you. Overall, I find the participants to be wise and generous. They continue to inspire me to work on Sjogren's Advocate.
Smart Patients www.smartpatients.com/sjogrens
A fairly new group, with robust discussion. Large numbers of newly diagnosed patients participate in this site. Our wonderful moderator, Robin, is not a Sjogren's patient, but has a deep understanding of chronic illness and experience with patient advocacy. She often posts links to pertinent articles and other resources on the site.
Robin has administered patient health groups on line since 1997, first as a volunteer and now as the coordinator of the online communities at Smart Patients. She says, "The Sjogren's community has been a joy ever since it started. It quickly became apparent patients were eager to share experiences and learn more about this condition which the medical community has neglected for so long."
Free membership is required to join the community and its private discussions.
SSL email list
Long standing Sjogren's discussion-and resources-created by David Dryden, a fellow Sjogren's patient.
Local support groups, in-person and online.
These can be particularly useful for local referrals and resources. For more information, contact the Sjogren's Foundation.