Academic medical centers usually include information about major rheumatologic diseases on their websites. Even though Sjogren's is a common, serious, systemic disease, it tends to be minimized or ignored. Sicca features typically dominate the description of Sjogren's on these websites. Systemic features are downplayed or sometimes left out altogether. Misleading content from prestigious medical centers reinforces clinicians' tendency to focus on sicca care, and little else. 

​

Johns Hopkins Rheumatology is the exception; their Sjogren's information is more balanced, detailed and up to date. 
 

Use with caution:
Problematic websites include the American College of Rheumatology (ACR), the Cleveland Clinic, Duke University, Mayo Clinic, and others. None of these websites captures the high burden of systemic disease or patient priorities such as fatigue, brain fog, and widespread pain. These direct Sjogren's features (not fibromyalgia) often have a profound impact on function and quality of life. 

The American College of Rheumatology website was recently updated, but they continue to omit links to the Sjogren's Clinical Practice Guidelines. This is problematic because the ACR is the go-to place for U. S. rheumatologists looking for practice guidance.