More to follow!
More to follow!
Exploring Sjogren's Videos, Sjogren's Foundation
Highly recommended. Videos one and two of the Season One series are a must see for newly diagnosed patients and their friends and family.
RESOURCES
Sjogren’s can take a significant toll on your physical and emotional health and your overall wellbeing. While I cannot provide individual medical advice, I can connect you to resources across the internet that will help meet your specific needs. Sjogren’s Advocate was created to help you advocate for better health care for yourself.
Emotional & Community Support
Patient Support Groups are a great way to find other Sjogren’s patients with whom to share ideas, information, products that work, and resources for supporting yourself.
Printable Handouts, Peer-Reviewed Publications, Websites, Blogs & Books
The Sjogren's Is More Than "Just Sicca" handout and User Guide shows how we know, based on scientific evidence, that Sjogren's is a serious, multi-system disease and never limited to sicca. The link to the handout is on the User Guide. Please read the User Guide carefully to
understand how to use the handout effectively.
Printable Handouts For Clinicians provides printable versions of the Clinical Practice Guidelines for Sjogren’s and other appropriate articles on Sjogren’s that you can share and discuss with your rheumatologist and other clinicians.
Key Articles provides the core peer-reviewed articles that directly pertain to clinical practice.
My Publications lists the articles I’ve published as an MD with Sjogren’s.
Websites & Blogs related to Sjogren’s round out and complement the information provided on Sjogren's Advocate.
Finally, here are three excellent books for self-advocacy to counter dismissive or incorrect statements made by clinicians.
Diagnostic Tests, Symptom-Specific Resources & Drug Information
Laboratory Tests lists websites and articles that address the tests and methods used to diagnose and assess Sjogren’s.
Dysautonomia lists websites and articles that address the various forms of dysautonomia and how to manage your symptoms and advocate for better health care.
Drug Information lists a website for retinal screening for hydroxychloroquine (Plaquenil) and medication interactions.
Videos
And finally, if you’re tired of reading, I highly recommend checking out the Videos page as it lists links to videos related to Sjogren’s and Sjogren’s care, dry eye disease, small fiber neuropathy, dysautonomia, and cardiovascular dysautonomias.
Updated 04-19-2021