RESOURCES

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Sjogren’s can take a significant toll on your physical and emotional health and your overall wellbeing. While I cannot provide individual medical advice, I can connect you to resources across the internet that will help meet your specific needs. Sjogren’s Advocate was created to help you advocate for better health care for yourself.  

Emotional & Community Support

Patient Support Groups are a great way to find other Sjogren’s patients with whom to share ideas, information, products that work, and resources for supporting yourself. 

Printable Handouts, Peer-Reviewed Publications, Websites, Blogs & Books

The Sjogren's Is More Than "Just Sicca" handout and User Guide shows how we know, based on scientific evidence, that Sjogren's is a serious, multi-system disease and never limited to sicca. The link to the handout is on the User Guide. Please read the User Guide carefully to 

understand how to use the handout effectively. 

 

Printable Handouts For Clinicians provides printable versions of the Clinical Practice Guidelines for Sjogren’s and other appropriate articles on Sjogren’s that you can share and discuss with your rheumatologist and other clinicians. 

My Publications lists the articles I’ve published as an MD with Sjogren’s. 

Finally, here are three excellent books for self-advocacy to counter dismissive or incorrect statements made by clinicians.

Diagnostic Tests & Drug Information

Laboratory Tests lists websites and articles that address the tests and methods used to diagnose and assess Sjogren’s.

 

Drug Information lists a website for retinal screening for hydroxychloroquine (Plaquenil) and medication interactions. 

Sjogren's disease and comorbidity information

Sjogren's Resources links to reliable, science-based information about Sjogren's disease. It describes the problem of outdated, inaccurate information that persists on many academic websites. 

 

Dysautonomia/ POTS lists websites and articles that address the various forms of dysautonomia and how to manage your symptoms and advocate for better health care.

Videos

And finally, if you’re tired of reading, I highly recommend checking out the Videos page to learn about Sjogren’s and Sjogren’s care, dry eye disease, small fiber neuropathy, dysautonomia, and cardiovascular dysautonomias.   

Updated 08-18-2022