Sjogren’s can take a significant toll on your physical and emotional wellbeing. This page connects you with resources and self-advocacy tools.
Patient Support Groups are a great way to find other Sjogren’s patients with whom to share ideas, information, products that work, and resources for supporting yourself.
There are a few Sjogren's specialty clinics in the U.S. Most patients will need to work with local clinicians for ongoing care. The clinics listed here are helpful for consultation if you are having trouble getting diagnosed or establishing a treatment plan.
Caution: Some clinicians and some clinics that claim to specialize in Sjogren's do not provide up to date care. The ones I listed are highly regarded.
Printable Handouts, Peer-Reviewed Publications, Websites, Blogs & Books
The Sjogren's Is More Than "Just Sicca" handout and User Guide. The handout covers the essential facts that every clinician should know about the disease. It shows why ongoing monitoring is needed for every patient, regardless of symptoms or antibody status. This self-advocacy tool makes a "slam-dunk" case showing that Sjogren's is a serious systemic disease. Please read the User Guide carefully to understand how to use the handout effectively.
Printable Handouts For Clinicians provides printable versions of the Clinical Practice Guidelines for Sjogren’s and other appropriate articles on Sjogren’s that you can share and discuss with your rheumatologist and other clinicians.
My Publications lists the articles I’ve published as an MD with Sjogren’s.
Finally, here are three excellent books for self-advocacy to counter dismissive or incorrect statements made by clinicians.
Sjogren's disease and comorbidity information
Sjogren's Resources links to reliable, science-based information about Sjogren's disease. It describes the problem of outdated, inaccurate information that persists on many academic websites.
If you’re tired of reading, I highly recommend checking out the Videos page to learn about Sjogren’s and Sjogren’s care, dry eye disease, small fiber neuropathy, dysautonomia, and cardiovascular dysautonomias.