SJOGREN'S ADVOCATE

Unlike RA and lupus, there is no sense of urgency to diagnose or treat Sjogren's, largely because the "Sjogren's is a mild sicca disease" myth remains deeply ingrained.

Ongoing Care - Part 2 outlines what optimal care for Sjogren’s disease looks like, starting at diagnosis & continuing throughout.

Ongoing Care - Part 1 introduces the Ongoing Care blog series about comprehensive monitoring of Sjogren's disease.

The official name change to Sjogren's disease can be used to encourage clinicians to address the serious, systemic nature of Sjogren's.

Myths and misconceptions about Sjogren's remain widespread, hindering diagnosis and proper care.

Fatigue, cognitive problems, and exercise intolerance may be caused by Sjogren’s, but they could also be indicators of iron deficiency.

It often surprises people that even MDs can experience dismissive treatment when their doctors do not understand their complex symptoms.

Sjogren's patients deserve the same level of knowledge, compassion, and coordinated care that breast cancer patients are offered.

Sjogren's diagnosis is often long delayed. Learn how to use the Sjogren's Foundation Diagnosis Handout to advocate for diagnosis.

This blog post explains why Sjogren’s patients should be monitored for CRP and ESR, and why these mean in Sjogren's.

Sjogren's is a systemic inflammatory disease, even if CRP and ESR are normal. Learn how cytokines may impact fatigue.

This blog post provides tools for talking to friends and family, and for countering misunderstanding and dismissive comments.

Most people with Sjogren's remain undiagnosed due to lack of clinician training and awareness.

Thanks for your support. Working together, Bexi and I can produce at least three times the information than I can working on my own.

A negative SSA doe not rule out Sjogren's. There is no one test for diagnosing Sjogren's.

Sjogren's often impacts the gastrointestinal tract. Many symptoms are neurologically based but mistaken for IBS.

Every Sjogren's patient should have routine screening for liver disease.

Celiac disease is common in Sjogren's patients. Every Sjogren's patient should be screened for celiac disease, regardless of symptoms.

Pulmonary hypertension is no longer considered rare in Sjogren's. Early detection and treatment are critical to improving outcomes.

Updated August 27, 2023 “ Right now it would be a step forward just to get a standardized approach to systemic symptoms and have them...