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Sjogren's is Sjogren's; it is not secondary to any other disease you may have.

Sarah Schafer, MD

Feb 16
3 min

Sjogren's is Sjogren's; it is not secondary to any other disease you may have.

The term "secondary Sjogren's" is inaccurate and misleading. Sjogren's is Sjogren's, alone or with another disease.

1,180 views

Exercise helps Sjogren's- here's how to do it safely

Sarah Schafer, MD

Jan 24
4 min

Exercise helps Sjogren's- here's how to do it safely

Developing an exercise program is one of the best ways to reduce Sjogren’s inflammation, improve overall health, and manage symptoms.

1,426 views

Sarah Schafer, MD

Dec 3, 2020
2 min

The videos are here!

Recordings from the 2020 Dysautonomia International Conference are now available for online viewing. ...

1,883 views

Sarah Schafer, MD

Nov 30, 2020
3 min

Working with rheumatologists

Printable handouts for rheumatologists.

773 views

Sarah Schafer, MD

Nov 5, 2020
2 min

Dysautonomia intro and conference

Dysautonomia impacts more than half of Sjogren's patients.

2,026 views

What you should know about Sjogren's lung disease

Sarah Schafer, MD

Oct 28, 2020
4 min

What you should know about Sjogren's lung disease

This page summarizes what patients should know about lung (pulmonary) disease in the context of Sjogren’s and the new Sjogren’s Pulmonary...

1,984 views

Sarah Schafer, MD

Oct 6, 2020
3 min

What is good Sjogren’s care?

Does your rheumatologist Listen to your lungs during routine clinic visits? Order tests for blood cell counts, liver function, and kidney...

1,130 views

Sarah Schafer, MD

Sep 28, 2020
3 min

Getting real about better care

Getting real about better care: Systemic features can be found in almost every patient, yet it is hard to get comprehensive care.

976 views

Four pillars that support clinical practice

Sarah Schafer, MD

Aug 31, 2020
4 min

Four pillars that support clinical practice

How do clinicians learn to treat diseases? They rely on these four pillars: 1. Clinical research. This includes studies that look at dise...

642 views

Sarah Schafer, MD

Aug 22, 2020
3 min

The Always Systemic page is key

Why did I write the Always Systemic page? I struggled a lot with how to present this information. I feel strongly that patients deserve a...

1,266 views

Sarah Schafer, MD

Jul 29, 2020
2 min

Sneak peek of Sjogren's is Systemic

The new Sjogren’s is Always Systemic page lays a foundation that supports the importance of comprehensive Sjogren’s care. Sjogren’s is of...

1,517 views

Sarah Schafer, MD

Jul 8, 2020
4 min

HCQ III - practical considerations

1. Discuss HCQ (hydroxychloroquine) use with your rheumatologist. Rheumatologists vary when it comes to using HCQ for Sjogren’s. It can b...

1,380 views

Sarah Schafer, MD

Jun 24, 2020
4 min

HCQ II - why treat Sjogren's?

Hydroxychloroquine (HCQ, aka “Plaquenil”) is the primary systemic medication used to treat Sjogren’s. Rheumatologists vary greatly when i...

2,482 views

HCQ I - how the shortage highlights Sjogren's neglect

Sarah Schafer, MD

Jun 16, 2020
2 min

HCQ I - how the shortage highlights Sjogren's neglect

HCQ = hydroxychloroquine, brand name "Plaquenil" During the peak of the recent HCQ shortage, the American College of Rheumatology (ACR) f...

1,042 views

Sarah Schafer, MD

May 31, 2020
4 min

How to educate clinicians

Patients are often confused about how to advocate for better care. Because so many clinicians are not up to date with Sjogren’s, diagnosi...

910 views

Sarah Schafer, MD

May 24, 2020
2 min

Medical and scientific initiatives

The key to better care! I encourage everyone to listen to the May 19, 2020, Sjogren’s FoundationTown Hall presentation by Kathy Hammitt a...

565 views

Sarah Schafer, MD

May 4, 2020
2 min

Town Halls and COVID-19 updates

Patients are finding the SF Town Halls to be very helpful. COVID-19 update, Go Bag reminder, and check out Kathy Hammitt's presentation 5-19

895 views

Sarah Schafer, MD

Apr 4, 2020
2 min

COVID-19 updates

The comments below include information from Steve Taylor’s Sjogren's Foundation Town Hall as well as the April 3rd CDC-AARDA presentation...

1,102 views

Sarah Schafer, MD

Mar 30, 2020
3 min

Protecting yourself during the pandemic

The "best of" recommendations from a scientist about how to protect yourself from Corona Virus infection.

1,466 views

Sarah Schafer, MD

Mar 25, 2020
3 min

Am I at increased risk for COVID-19?

YES. Sjogren’s patients are at higher risk for infection and serious complications of infection. My opinion about this is shared by many...

10,168 views

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Sjogren's is Sjogren's; it is not secondary to any other disease you may have.

Exercise helps Sjogren's- here's how to do it safely

The videos are here!

Working with rheumatologists

Dysautonomia intro and conference

What you should know about Sjogren's lung disease

What is good Sjogren’s care?

Getting real about better care

Four pillars that support clinical practice

The Always Systemic page is key

Sneak peek of Sjogren's is Systemic

HCQ III - practical considerations

HCQ II - why treat Sjogren's?

HCQ I - how the shortage highlights Sjogren's neglect

How to educate clinicians

Medical and scientific initiatives

Town Halls and COVID-19 updates

COVID-19 updates

Protecting yourself during the pandemic

Am I at increased risk for COVID-19?