What Care Do I Need?
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An introduction to the Ongoing Care series. This series will help you advocate for comprehensive Sjogren's monitoring and management.
Sarah Schafer, MD
Nov 163 min read
New Self-Advocacy Tool – It’s Sjogren’s Disease
The official name change to Sjogren's disease can be used to encourage clinicians to address the serious, systemic nature of Sjogren's.
1,611 views
Sarah Schafer, MD
Oct 113 min read
Myth-busting for Rheumatologists
Myths and misconceptions about Sjogren's remain widespread, hindering diagnosis and proper care.
2,195 views
Sarah Schafer, MD
Sep 75 min read
Iron Deficiency and Sjogren’s
Fatigue, cognitive problems, and exercise intolerance may be caused by Sjogren’s, but they could also be indicators of iron deficiency.
2,869 views
Sarah Schafer, MD
May 115 min read
My Sjogren's Journey
It often surprises people that even MDs can experience dismissive treatment when their doctors do not understand their complex symptoms.
2,910 views
Sarah Schafer, MD
May 45 min read
Breast Cancer and Sjogren's - A Tale of Two Diseases
Sjogren's patients deserve the same level of knowledge, compassion, and coordinated care that breast cancer patients are offered.
1,642 views
Sarah Schafer, MD
Mar 295 min read
Why is it so hard to get diagnosed?
Sjogren's diagnosis is often long delayed. Learn how to use the Sjogren's Foundation Diagnosis Handout to advocate for diagnosis.
3,062 views
Sarah Schafer, MD
Jan 64 min read
Sjogren's and Inflammation - Part II
This blog post explains why Sjogren’s patients should be monitored for CRP and ESR, and why these mean in Sjogren's.
5,599 views
Sarah Schafer, MD
Dec 17, 20234 min read
Sjogren's and Inflammation - Part I
Sjogren's is a systemic inflammatory disease, even if CRP and ESR are normal. Learn how cytokines may impact fatigue.
6,650 views
Sarah Schafer, MD
Oct 28, 20236 min read
Communicating With Family and Friends About Sjogren’s
This blog post provides tools for talking to friends and family, and for countering misunderstanding and dismissive comments.
4,261 views
Sarah Schafer, MD
Sep 3, 20237 min read
12 Reasons People With Sjogren's Don't Get Diagnosed
Most people with Sjogren's remain undiagnosed due to lack of clinician training and awareness.
8,930 views
Rebecca Lobo
Aug 31, 20232 min read
We're Making Great Strides
Thanks for your support.
Working together, Bexi and I can produce at least three times the information than I can working on my own.
1,204 views
Sarah Schafer, MD
Aug 20, 20236 min read
SSA and Sjogren's
A negative SSA doe not rule out Sjogren's. There is no one test for diagnosing Sjogren's.
11,193 views
Sarah Schafer, MD
Jun 10, 20236 min read
Gastrointestinal (GI) Manifestations
Sjogren's often impacts the gastrointestinal tract. Many symptoms are neurologically based but mistaken for IBS.
15,806 views
Sarah Schafer, MD
May 26, 20233 min read
Liver disease and Sjogren's
Every Sjogren's patient should have routine screening for liver disease.
9,541 views
Sarah Schafer, MD
May 18, 20234 min read
Celiac disease, gluten, and your health
Celiac disease is common in Sjogren's patients. Every Sjogren's patient should be screened for celiac disease, regardless of symptoms.
2,976 views
Sarah Schafer, MD
May 11, 20233 min read
Pulmonary hypertension
Pulmonary hypertension is no longer considered rare in Sjogren's. Early detection and treatment are critical to improving outcomes.
4,992 views
Sarah Schafer, MD
Mar 14, 20236 min read
Moving forward
Updated August 27, 2023 “Right now it would be a step forward just to get a standardized approach to systemic symptoms and have them...
1,909 views
Sarah Schafer, MD
Feb 8, 20233 min read
Signs, symptoms, and manifestations
Understanding manifestations, signs, and symptoms will help you talk with your doctors about Sjogren’s care that goes beyond sicca.
5,804 views
Sarah Schafer, MD
Jan 26, 20232 min read
Manifestations vs. Comorbidities
Learn about the difference between Sjogren's manifestations and comorbidities, and why they are both important to address.
3,326 views
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