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Peripheral Nervous System Guidelines: Introduction to Sjogren’s Neuropathy Care
An Introduction to the Peripheral Nervous System Clinical Practice Guideline
Sarah Schafer, MD
Dec 12, 20253 min read
How My Doctors Monitor Me For Sjogren’s
In this blog post, I share how I am monitored as a long-standing patient.
Sarah Schafer, MD
Nov 22, 20259 min read
The 7 Components of Sjogren’s Care
This post lays the foundation for the process by outlining the 7 components of comprehensive Sjogren's care and identifying the people who can help you manage them.
Sarah Schafer, MD
Sep 26, 20255 min read
If Sjogren’s is a Serious Disease, Why Don’t Doctors Take it Seriously?
Unlike RA and lupus, there is no sense of urgency to diagnose or treat Sjogren's, largely because the "Sjogren's is a mild sicca disease" myth remains deeply ingrained.
Sarah Schafer, MD
Aug 10, 20256 min read
Sjogren’s Care Varies Over Time.
Ongoing Care - Part 2 outlines what optimal care for Sjogren’s disease looks like, starting at diagnosis & continuing throughout.
Sarah Schafer, MD
Mar 14, 20254 min read
What Care Do I Need?
Ongoing Care - Part 1
introduces the Ongoing Care blog series about comprehensive monitoring of Sjogren's disease.
Sarah Schafer, MD
Dec 7, 20244 min read
New Self-Advocacy Tool – It’s Sjogren’s Disease
The official name change to Sjogren's disease can be used to encourage clinicians to address the serious, systemic nature of Sjogren's.
Sarah Schafer, MD
Nov 16, 20243 min read
Myth-busting for Rheumatologists
Myths and misconceptions about Sjogren's remain widespread, hindering diagnosis and proper care.
Sarah Schafer, MD
Oct 11, 20244 min read
Iron Deficiency and Sjogren’s
Fatigue, cognitive problems, and exercise intolerance may be caused by Sjogren’s, but they could also be indicators of iron deficiency.
Sarah Schafer, MD
Sep 6, 20245 min read
My Sjogren's Journey
It often surprises people that even MDs can experience dismissive treatment when their doctors do not understand their complex symptoms.
Sarah Schafer, MD
May 10, 20245 min read
Breast Cancer and Sjogren's - A Tale of Two Diseases
Sjogren's patients deserve the same level of knowledge, compassion, and coordinated care that breast cancer patients are offered.
Sarah Schafer, MD
May 4, 20246 min read
Why Is It So Hard To Get Diagnosed?
Sjogren's diagnosis is often long delayed. Learn how to use the Sjogren's Foundation Diagnosis Handout to advocate for diagnosis.
Sarah Schafer, MD
Mar 29, 20245 min read
Sjogren's and Inflammation - Part II
This blog post explains why Sjogren’s patients should be monitored for CRP and ESR, and why these mean in Sjogren's.
Sarah Schafer, MD
Jan 5, 20244 min read
Sjogren's and Inflammation - Part I
Sjogren's is a systemic inflammatory disease, even if CRP and ESR are normal. Learn how cytokines may impact fatigue.
Sarah Schafer, MD
Dec 16, 20234 min read
Communicating With Family and Friends About Sjogren’s
This blog post provides tools for talking to friends and family, and for countering misunderstanding and dismissive comments.
Sarah Schafer, MD
Oct 28, 20236 min read
12 Reasons People With Sjogren's Don't Get Diagnosed
Most people with Sjogren's remain undiagnosed due to lack of clinician training and awareness.
Sarah Schafer, MD
Sep 3, 20237 min read
We're Making Great Strides
Thanks for your support.
Working together, Bexi and I can produce at least three times the information than I can working on my own.
Rebecca Lobo
Aug 31, 20232 min read
SSA and Sjogren's
A negative SSA doe not rule out Sjogren's. There is no one test for diagnosing Sjogren's.
Sarah Schafer, MD
Aug 20, 20236 min read
Gastrointestinal (GI) Manifestations
Sjogren's often impacts the gastrointestinal tract. Many symptoms are neurologically based but mistaken for IBS.
Sarah Schafer, MD
Jun 10, 20236 min read
Liver Disease and Sjogren's
Every Sjogren's patient should have routine screening for liver disease.
Sarah Schafer, MD
May 26, 20233 min read
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