SJOGREN'S ADVOCATE

Once Sjogren's is diagnosed, the fibromyalgia label should be dropped.

Sjogren's is called autoimmune, but it is not that simple. It is a complex, systemic immune-mediated disease.

Sjogren's Advocate has many new terms and concepts for lay readers. This post explains how to read and understand the information.

As I explained in my email from 03/20/21 (feel free to jump to the Instructions if you already read the email), I need your helping...

The term "secondary Sjogren's" is inaccurate and misleading. Sjogren's is Sjogren's, alone or with another disease.

Developing an exercise program is one of the best ways to reduce Sjogren’s inflammation, improve overall health, and manage symptoms.

Recordings from the 2020 Dysautonomia International Conference are now available for online viewing. ...

Printable handouts for rheumatologists.

Dysautonomia impacts more than half of Sjogren's patients.

This page summarizes what patients should know about lung (pulmonary) disease. It introduces the new Sjogren's Pulmonary Clinical...

Does your rheumatologist Listen to your lungs during routine clinic visits? Order tests for blood cell counts, liver function, and kidney...

Getting real about better care: Systemic features can be found in almost every patient, yet it is hard to get comprehensive care.

How do clinicians learn to treat diseases? They rely on these four pillars: 1. Clinical research. This includes studies that look at...

Why did I write the Always Systemic page? I struggled a lot with how to present this information. I feel strongly that patients deserve...

The new Sjogren’s is Always Systemic page lays a foundation that supports the importance of comprehensive Sjogren’s care. Sjogren’s is...

1. Discuss HCQ (hydroxychloroquine) use with your rheumatologist. Rheumatologists vary when it comes to using HCQ for Sjogren’s. It can...

Hydroxychloroquine (HCQ, aka “Plaquenil”) is the primary systemic medication used to treat Sjogren’s. Rheumatologists vary greatly when...

HCQ = hydroxychloroquine, brand name "Plaquenil" During the peak of the recent HCQ shortage, the American College of Rheumatology (ACR)...

Patients are often confused about how to advocate for better care. Because so many clinicians are not up to date with Sjogren’s,...

The key to better care! I encourage everyone to listen to the May 19, 2020, Sjogren’s Foundation Town Hall presentation by Kathy Hammitt...