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Sarah Schafer, MD

2 days ago
3 min

So what is Sjogren's, really?

Sjogren's is called autoimmune, but it is not that simple. It is a complex, systemic immune-mediated disease.

809 views

Tips for understanding the information published on Sjogren’s Advocate

Sarah Schafer, MD

Apr 23
3 min

Tips for understanding the information published on Sjogren’s Advocate

Sjogren's Advocate has many new terms and concepts for lay readers. This post explains how to read and understand the information.

988 views

Sarah Schafer, MD

Mar 20
3 min

How to help Sjogren's Advocate

As I explained in my email from 03/20/21 (feel free to jump to the Instructions if you already read the email), I need your helping...

664 views

Sjogren's is Sjogren's; it is not secondary to any other disease you may have.

Sarah Schafer, MD

Feb 16
3 min

Sjogren's is Sjogren's; it is not secondary to any other disease you may have.

The term "secondary Sjogren's" is inaccurate and misleading. Sjogren's is Sjogren's, alone or with another disease.

1,539 views

Exercise helps Sjogren's- here's how to do it safely

Sarah Schafer, MD

Jan 24
4 min

Exercise helps Sjogren's- here's how to do it safely

Developing an exercise program is one of the best ways to reduce Sjogren’s inflammation, improve overall health, and manage symptoms.

1,951 views

Sarah Schafer, MD

Dec 3, 2020
2 min

The videos are here!

Recordings from the 2020 Dysautonomia International Conference are now available for online viewing. ...

2,150 views

Sarah Schafer, MD

Nov 30, 2020
3 min

Working with rheumatologists

Printable handouts for rheumatologists.

1,146 views

Sarah Schafer, MD

Nov 5, 2020
2 min

Dysautonomia intro and conference

Dysautonomia impacts more than half of Sjogren's patients.

2,243 views

What you should know about Sjogren's lung disease- (rev.3-5-21)

Sarah Schafer, MD

Oct 28, 2020
4 min

What you should know about Sjogren's lung disease- (rev.3-5-21)

This page summarizes what patients should know about lung (pulmonary) disease. It introduces the new Sjogren's Pulmonary Clinical...

2,640 views

Sarah Schafer, MD

Oct 6, 2020
3 min

What is good Sjogren’s care?

Does your rheumatologist Listen to your lungs during routine clinic visits? Order tests for blood cell counts, liver function, and kidney...

1,388 views

Sarah Schafer, MD

Sep 28, 2020
3 min

Getting real about better care

Getting real about better care: Systemic features can be found in almost every patient, yet it is hard to get comprehensive care.

1,077 views

Four pillars that support clinical practice

Sarah Schafer, MD

Aug 31, 2020
4 min

Four pillars that support clinical practice

How do clinicians learn to treat diseases? They rely on these four pillars: 1. Clinical research. This includes studies that look at...

664 views

Sarah Schafer, MD

Aug 22, 2020
3 min

The Always Systemic page is key

Why did I write the Always Systemic page? I struggled a lot with how to present this information. I feel strongly that patients deserve...

1,312 views

Sarah Schafer, MD

Jul 29, 2020
2 min

Sneak peek of Sjogren's is Systemic

The new Sjogren’s is Always Systemic page lays a foundation that supports the importance of comprehensive Sjogren’s care. Sjogren’s is...

1,557 views

Sarah Schafer, MD

Jul 8, 2020
4 min

HCQ III - practical considerations

1. Discuss HCQ (hydroxychloroquine) use with your rheumatologist. Rheumatologists vary when it comes to using HCQ for Sjogren’s. It can...

1,619 views

HCQ II - why treat Sjogren's? (updated 3-19-21)

Sarah Schafer, MD

Jun 24, 2020
4 min

HCQ II - why treat Sjogren's? (updated 3-19-21)

Hydroxychloroquine (HCQ, aka “Plaquenil”) is the primary systemic medication used to treat Sjogren’s. Rheumatologists vary greatly when...

2,940 views

HCQ I - how the shortage highlights Sjogren's neglect

Sarah Schafer, MD

Jun 16, 2020
2 min

HCQ I - how the shortage highlights Sjogren's neglect

HCQ = hydroxychloroquine, brand name "Plaquenil" During the peak of the recent HCQ shortage, the American College of Rheumatology (ACR)...

1,082 views

Sarah Schafer, MD

May 31, 2020
4 min

How to educate clinicians

Patients are often confused about how to advocate for better care. Because so many clinicians are not up to date with Sjogren’s,...

980 views

Sarah Schafer, MD

May 24, 2020
2 min

Medical and scientific initiatives

The key to better care! I encourage everyone to listen to the May 19, 2020, Sjogren’s Foundation Town Hall presentation by Kathy Hammitt...

571 views

Town Halls: COVID-19 and more UPDATE 3-29-21

Sarah Schafer, MD

May 4, 2020
3 min

Town Halls: COVID-19 and more UPDATE 3-29-21

Patients are finding the SF Town Halls to be very helpful. COVID-19 update, Go Bag reminder, and check out Kathy Hammitt's presentation 5-19

908 views

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SJOGREN'S ADVOCATE

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So what is Sjogren's, really?

Tips for understanding the information published on Sjogren’s Advocate

How to help Sjogren's Advocate

Sjogren's is Sjogren's; it is not secondary to any other disease you may have.

Exercise helps Sjogren's- here's how to do it safely

The videos are here!

Working with rheumatologists

Dysautonomia intro and conference

What you should know about Sjogren's lung disease- (rev.3-5-21)

What is good Sjogren’s care?

Getting real about better care

Four pillars that support clinical practice

The Always Systemic page is key

Sneak peek of Sjogren's is Systemic

HCQ III - practical considerations

HCQ II - why treat Sjogren's? (updated 3-19-21)

HCQ I - how the shortage highlights Sjogren's neglect

How to educate clinicians

Medical and scientific initiatives

Town Halls: COVID-19 and more UPDATE 3-29-21

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