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FOR SJOGREN'S...SIMPLIFIED.
Key Concepts
Sjogren's is complex. Learning about it shouldn't be.
Introduction
​To increase your chances of successfully advocating for care for Sjogren's, Sjogren's Avocate describes Sjogren's disease using accurate medical and scientific language.
But the technical language and volume of information on Sjogren's Advocate can be overwhelming.
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This page describes Sjogren's using simpler language and directs you to important information and resources on Sjogren's Advocate (of which you may be unaware) that will help you more successfully advocate for care.
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Most of the entries below are also posts on the Facebook page* and Instagram account for Sjogren's Advocate. The most recent entry in this series will be at the top of this page. ​
Follow us: @sjogrensadvocate*
*We're currently experiencing issues with the Facebook page and it is unavailable. Thank you for your patience as we work to resolve the issues.
SELF-ADVOCACY RESOURCES
Sjogren's is Systemic - published 03.01.2025
Most doctors and patients know that Sjogren’s causes dry eyes and dry mouth.
But it’s important to understand that Sjogren's is never just about dryness. Sjogren's can affect almost any part of the body, not just the moisture-producing glands. These other problems, caused directly by Sjogren’s disease and that are beyond dryness, are called “systemic manifestations”.
Finding and treating these systemic manifestations of Sjogren’s early can help slow the progression of the disease, make you feel better, and in some cases, even save your life.
If your doctor believes Sjogren's is mainly dry eyes and mouth, they're likely to miss serious systemic manifestations.
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Updated 03-02-2025