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Exploring Sjogren's Videos, Sjogren's Foundation

Highly recommended. Videos one and two of the Season One series are a must see for newly diagnosed patients and their friends and family. 

SJOGREN'S ADVOCATE

Promoting optimal care for Sjogren's, a common, serious & systemic disease. 

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    Why doesn't my doctor understand Sjogren's?
    Sarah Schafer, MD
    • Jan 3
    • 3 min

    Why doesn't my doctor understand Sjogren's?

    Clinicians who believe the" nuisance sicca disease" myth are being led astray by outdated assumptions about the disease.
    1,815 views
    Countering misinformation - MYTH # 1            Sjogren's is mostly dryness, not systemic.
    Sarah Schafer, MD
    • Dec 8, 2021
    • 4 min

    Countering misinformation - MYTH # 1 Sjogren's is mostly dryness, not systemic.

    The most important thing for clinicians to know about Sjogren's is that it is a serious systemic disease.
    1,717 views
    How patients experience Sjogren's
    Sarah Schafer, MD
    • Nov 11, 2021
    • 5 min

    How patients experience Sjogren's

    Patients often a hard time finding doctors who understand Sjogren's and take it seriously.
    1,776 views
    The new ICD-10 codes:                               a low-key way to educate clinicians
    Sarah Schafer, MD
    • Oct 9, 2021
    • 2 min

    The new ICD-10 codes: a low-key way to educate clinicians

    The new ICD-10 codes for Sjogren's offer an easy, low-key want to educate clinicians about the systemic nature of the disease.
    1,937 views
    Do you have antibodies?
    Sarah Schafer, MD
    • Sep 18, 2021
    • 4 min

    Do you have antibodies?

    Everyone with Sjogren's, including seronegative patients, should be routinely monitored for systemic manifestations of the disease.
    2,275 views
    Educating clinicians...sometimes   through the back door
    Sarah Schafer, MD
    • Aug 3, 2021
    • 2 min

    Educating clinicians...sometimes through the back door

    An upcoming CME conference, What you need to know about autonomic disorders, is very pertinent to Sjogren’s care.
    1,221 views
    Sjogren's symptoms can                         look like fibromyalgia
    Sarah Schafer, MD
    • Jun 22, 2021
    • 4 min

    Sjogren's symptoms can look like fibromyalgia

    Once Sjogren's is diagnosed, the fibromyalgia label should be dropped.
    6,072 views
    Sjogren's is Sjogren's; it is not secondary to any other disease you may have.
    Sarah Schafer, MD
    • Feb 16, 2021
    • 3 min

    Sjogren's is Sjogren's; it is not secondary to any other disease you may have.

    The term "secondary Sjogren's" is inaccurate and misleading. Sjogren's is Sjogren's, alone or with another disease.
    2,271 views
    Exercise helps Sjogren's- here's how to do it safely
    Sarah Schafer, MD
    • Jan 24, 2021
    • 4 min

    Exercise helps Sjogren's- here's how to do it safely

    Developing an exercise program is one of the best ways to reduce Sjogren’s inflammation, improve overall health, and manage symptoms.
    7,373 views
    The videos are here!
    Sarah Schafer, MD
    • Dec 3, 2020
    • 2 min

    The videos are here!

    Recordings from the 2020 Dysautonomia International Conference are now available for online viewing. ...
    2,757 views
    Dysautonomia intro and conference
    Sarah Schafer, MD
    • Nov 5, 2020
    • 2 min

    Dysautonomia intro and conference

    Dysautonomia impacts more than half of Sjogren's patients.
    2,539 views
    What is good Sjogren’s care?
    Sarah Schafer, MD
    • Oct 6, 2020
    • 3 min

    What is good Sjogren’s care?

    Does your rheumatologist Listen to your lungs during routine clinic visits? Order tests for blood cell counts, liver function, and kidney...
    2,255 views
    Getting real about better care
    Sarah Schafer, MD
    • Sep 28, 2020
    • 3 min

    Getting real about better care

    Getting real about better care: Systemic features can be found in almost every patient, yet it is hard to get comprehensive care.
    1,141 views
    Four pillars that support clinical practice
    Sarah Schafer, MD
    • Aug 31, 2020
    • 3 min

    Four pillars that support clinical practice

    How do clinicians learn to treat diseases? They rely on these four pillars: 1. Clinical research. This includes studies that look at...
    775 views
    The Always Systemic page is key
    Sarah Schafer, MD
    • Aug 22, 2020
    • 3 min

    The Always Systemic page is key

    Why did I write the Always Systemic page? I struggled a lot with how to present this information. I feel strongly that patients deserve...
    1,381 views
    Sneak peek of Sjogren's is Systemic
    Sarah Schafer, MD
    • Jul 29, 2020
    • 2 min

    Sneak peek of Sjogren's is Systemic

    The new Sjogren’s is Always Systemic page lays a foundation that supports the importance of comprehensive Sjogren’s care. Sjogren’s is...
    1,617 views
    HCQ III - practical considerations
    Sarah Schafer, MD
    • Jul 8, 2020
    • 4 min

    HCQ III - practical considerations

    1. Discuss HCQ (hydroxychloroquine) use with your rheumatologist. Rheumatologists vary when it comes to using HCQ for Sjogren’s. It can...
    2,447 views
    HCQ II - why treat Sjogren's?        (updated 2-5-2022)
    Sarah Schafer, MD
    • Jun 24, 2020
    • 4 min

    HCQ II - why treat Sjogren's? (updated 2-5-2022)

    Hydroxychloroquine (HCQ, aka “Plaquenil”) is the primary systemic medication used to treat Sjogren’s. Rheumatologists vary greatly when...
    7,822 views
    HCQ I - how the shortage highlights Sjogren's neglect
    Sarah Schafer, MD
    • Jun 16, 2020
    • 2 min

    HCQ I - how the shortage highlights Sjogren's neglect

    HCQ = hydroxychloroquine, brand name "Plaquenil" During the peak of the recent HCQ shortage, the American College of Rheumatology (ACR)...
    1,188 views
    How to educate clinicians
    Sarah Schafer, MD
    • May 31, 2020
    • 4 min

    How to educate clinicians

    Patients are often confused about how to advocate for better care. Because so many clinicians are not up to date with Sjogren’s,...
    1,121 views
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