SJOGREN'S ADVOCATE

The term "secondary Sjogren's" is inaccurate and misleading. Sjogren's is Sjogren's, alone or with another disease.

Developing an exercise program is one of the best ways to reduce Sjogren’s inflammation, improve overall health, and manage symptoms.

Recordings from the 2020 Dysautonomia International Conference are now available for online viewing. ...

Dysautonomia impacts more than half of Sjogren's patients.

Does your rheumatologist Listen to your lungs during routine clinic visits? Order tests for blood cell counts, liver function, and kidney...

Getting real about better care: Systemic features can be found in almost every patient, yet it is hard to get comprehensive care.

How do clinicians learn to treat diseases? They rely on these four pillars: 1. Clinical research. This includes studies that look at...

Why did I write the Always Systemic page? I struggled a lot with how to present this information. I feel strongly that patients deserve...

The new Sjogren’s is Always Systemic page lays a foundation that supports the importance of comprehensive Sjogren’s care. Sjogren’s is...

1. Discuss HCQ (hydroxychloroquine) use with your rheumatologist. Rheumatologists vary when it comes to using HCQ for Sjogren’s. It can...

Hydroxychloroquine (HCQ, aka “Plaquenil”) is the primary systemic medication used to treat Sjogren’s. Rheumatologists vary greatly when...

HCQ = hydroxychloroquine, brand name "Plaquenil" During the peak of the recent HCQ shortage, the American College of Rheumatology (ACR)...

Patients are often confused about how to advocate for better care. Because so many clinicians are not up to date with Sjogren’s,...

Key Articles The Key Articles: Sjogren’s Annotated Bibliography page is a great way to share Sjogren’s information with your clinicians....

Understanding why Sjogren's is often overlooked and misunderstood can help patients better advocate for themselves.

Medical terms used to describe Sjogren's are often misleading, and reinforce dismissive attitudes about the disease.

This latest section for Newly Diagnosed offers a starting guide for new patients. Seasoned patients and those in the process of diagnosis...

Do you have any of these? 1. Relentless, profound physical fatigue 2. Brain fog: Mental fatigue/cognitive changes 3. Dizziness or...

Exploring Sjogren's Episode 1 - What is Sjogren's? Exploring Sjogren's Episode 2- Living with Sjogren's

You have probably noticed that a lot of numbers inside parentheses are scattered throughout the website and blog. These are citations....