Sarah Schafer, MD
My POTS diagnosis: worth the struggle
Learn how self-advocacy helped me get diagnosed and treated for POTS, an autonomic disorder.
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More to follow!
More to follow!
Exploring Sjogren's Videos, Sjogren's Foundation
Highly recommended. Videos one and two of the Season One series are a must see for newly diagnosed patients and their friends and family.
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Sarah Schafer, MD
- Aug 5, 2022
- 4 min
All in your head?
Many people with Sjogren's are told they have functional disorders, when their symptoms are direct, physical Sjogren's manifestations.
2,704 views
Sarah Schafer, MD
- Jan 3, 2022
- 3 min
Why doesn't my doctor understand Sjogren's?
Clinicians who believe the" nuisance sicca disease" myth are being led astray by outdated assumptions about the disease.
2,255 views
Sarah Schafer, MD
- Sep 18, 2021
- 4 min
Do you have antibodies?
Everyone with Sjogren's, including seronegative patients, should be routinely monitored for systemic manifestations of the disease.
4,524 views
Sarah Schafer, MD
- Jun 22, 2021
- 4 min
Sjogren's symptoms can look like fibromyalgia
Once Sjogren's is diagnosed, the fibromyalgia label should be dropped.
9,576 views
Sarah Schafer, MD
- May 17, 2021
- 3 min
So what is Sjogren's, really?
Sjogren's is called autoimmune, but it is not that simple. It is a complex, systemic immune-mediated disease.
3,559 views
Sarah Schafer, MD
- Feb 16, 2021
- 3 min
Sjogren's is Sjogren's; it is not secondary to any other disease you may have.
The term "secondary Sjogren's" is inaccurate and misleading. Sjogren's is Sjogren's, alone or with another disease.
2,804 views
Sarah Schafer, MD
- Dec 3, 2020
- 2 min
The videos are here!
Recordings from the 2020 Dysautonomia International Conference are now available for online viewing. ...
3,043 views
Sarah Schafer, MD
- Nov 5, 2020
- 2 min
Dysautonomia intro and conference
Dysautonomia impacts more than half of Sjogren's patients.
2,630 views
Sarah Schafer, MD
- May 31, 2020
- 4 min
How to educate clinicians
Patients are often confused about how to advocate for better care. Because so many clinicians are not up to date with Sjogren’s,...
1,216 views
Sarah Schafer, MD
- Oct 23, 2019
- 3 min
Working with PCPs - II
Key Articles The Key Articles: Sjogren’s Annotated Bibliography page is a great way to share Sjogren’s information with your clinicians....
897 views
Sarah Schafer, MD
- Jul 19, 2019
- 4 min
Words matter: problematic Sjogren's disease terms
Medical terms used to describe Sjogren's are often misleading, and reinforce dismissive attitudes about the disease.
1,036 views
Sarah Schafer, MD
- May 11, 2019
- 3 min
Neuropathy: Maybe it's all connected... Updated 09-19-2022
Do you have any of these? 1. Relentless, profound physical fatigue 2. Brain fog: Mental fatigue/cognitive changes 3. Dizziness or...
6,443 views
Sarah Schafer, MD
- Apr 26, 2019
- 2 min
What are all those numbers in parentheses?
You have probably noticed that a lot of numbers inside parentheses are scattered throughout the website and blog. These are citations....
690 views
Sarah Schafer, MD
- Apr 12, 2019
- 3 min
Do you have dysautonomia?
Dysautonomia, or malfunction of the autonomic nervous system, is estimated to impact more than half of Sjogren's patients.
9,198 views
Sarah Schafer, MD
- Mar 12, 2019
- 2 min
Misperceptions about Classification Criteria
Many patients are told that they cannot have Sjogren's because they don't meet the Classification Criteria. This is simply incorrect....
623 views
Sarah Schafer, MD
- Jan 28, 2019
- 1 min
Misleading NYT Article
Earlier this month, I posted an online comment regarding this New York Times Article: He Thought He Just Had the Flu at First. Then His...
758 views
Sarah Schafer, MD
- Jan 16, 2019
- 2 min
Neurological manifestations are often overlooked
Drs. McCoy and Baer made some important points in their Dec. 2017 article, Neurological Complications of Sjogren’s Syndrome: Diagnosis...
1,575 views
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