This blog post is designed to “set the stage” for working with rheumatologists. Understanding how the health care system impacts Sjogren’s care is important for effective self-advocacy. The big picture The U.S. health care system falls short when it comes to meeting the needs of complex disease patients. Procedures tend to be reimbursed handsomely, but the time spent communicating with patients is not. Lifespan is considered paramount, but “healthspan,” including quality of l

Do you have any of these? 1. Relentless, profound physical fatigue 2. Brain fog: Mental fatigue/cognitive changes 3. Dizziness or...

Drs. McCoy and Baer made some important points in their Dec. 2017 article, Neurological Complications of Sjogren’s Syndrome: Diagnosis...