Welcome to Sjogrens Advocate
Updated: Apr 15
I was inspired to create Sjogren's Advocate after years of watching the continued neglect of Sjogren's by medical education. Primary care clinicians are willing and eager to learn, but remain largely unfamiliar with the disease. Lack of training combined with large gaps in clinical research means that Sjogren's is often not considered important, even though it is a common, serious, multi-systemic inflammatory disease.
This website offers a practical guide to help both patients and non-rheumatology clinicians navigate this complex disease.
I started off with the topic of diagnosis because it is such a big problem for many patients. Many other topics are in the works; you may find some pages that say "more to follow" or "under construction" when you explore the site.
In the body of the website, you will see several colors of "call out" boxes:
The yellow boxes are for commentary, tips and highlights.
The blue boxes contain patient stories.
The green boxes are the "geek" boxes: they include quotes from journal articles and the science underlying much of the content. You may choose to skip these green boxes, or you may as fascinated as I am about the evolving understanding of Sjogren's and autoimmunity.
Please send feedback about this site or its contents to firstname.lastname@example.org. I may not be able to get back to you right away. Be sure to read the disclaimer, which requests that you do not ask for advice about your personal health situation. Online forums such as Smart Patients and others are a good place to discuss those issues.