SJOGREN'S ADVOCATE

Does your rheumatologist Listen to your lungs during routine clinic visits? Order tests for blood cell counts, liver function, and kidney...

Getting real about better care: Systemic features can be found in almost every patient, yet it is hard to get comprehensive care.

How do clinicians learn to treat diseases? They rely on these four pillars: 1. Clinical research. This includes studies that look at...

Updated 01-15-2025 1. Discuss HCQ (hydroxychloroquine) use with your rheumatologist. Rheumatologists vary when it comes to using HCQ for...

UPDATED 01-15-2025 Hydroxychloroquine (HCQ, aka Plaquenil) is the primary systemic medication used to treat Sjogren’s. Even though...

HCQ = hydroxychloroquine, brand name "Plaquenil" During the peak of the recent hydroxychloroquine (HCQ) shortage, the American College of...

Patients are often confused about how to advocate for better care. Because so many clinicians are not up to date with Sjogren’s,...

Understanding why Sjogren's is often overlooked and misunderstood can help patients better advocate for themselves.

Medical terms used to describe Sjogren's are often misleading, and reinforce dismissive attitudes about the disease.

Do you have any of these? 1. Relentless, profound physical fatigue 2. Brain fog: Mental fatigue/cognitive changes 3. Dizziness or...

Exploring Sjogren's Episode 1 - What is Sjogren's? Exploring Sjogren's Episode 2- Living with Sjogren's

Citations can be extremely useful for self-advocacy, especially when addressing misperceptions about Sjogren’s. What is a citation? You...

Dysautonomia, or malfunction of the autonomic nervous system, is estimated to impact more than half of Sjogren's patients.

Many patients are told that they cannot have Sjogren's because they don't meet the Classification Criteria. This is simply incorrect....

Earlier this month, I posted an online comment regarding this New York Times Article: He Thought He Just Had the Flu at First. Then His...