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What is good Sjogren’s care?
Does your rheumatologist Listen to your lungs during routine clinic visits? Order tests for blood cell counts, liver function, and kidney...
Sarah Schafer, MD
Oct 6, 20204 min read
6,315 views


Getting real about better care
Getting real about better care: Systemic features can be found in almost every patient, yet it is hard to get comprehensive care.
Sarah Schafer, MD
Sep 28, 20202 min read
1,255 views


Four pillars that support clinical practice
How do clinicians learn to treat diseases? They rely on these four pillars: 1. Clinical research. This includes studies that look at...
Sarah Schafer, MD
Aug 31, 20203 min read
998 views


HCQ III - Practical considerations
Updated 01-15-2025 1. Discuss HCQ (hydroxychloroquine) use with your rheumatologist. Rheumatologists vary when it comes to using HCQ for...
Sarah Schafer, MD
Jul 8, 20205 min read
5,825 views


HCQ II - Why treat Sjogren's?
UPDATED 01-15-2025 Hydroxychloroquine (HCQ, aka Plaquenil) is the primary systemic medication used to treat Sjogren’s. Even though...
Sarah Schafer, MD
Jun 24, 20206 min read
31,027 views


HCQ I - How the shortage highlights Sjogren's neglect
HCQ = hydroxychloroquine, brand name "Plaquenil" During the peak of the recent hydroxychloroquine (HCQ) shortage, the American College of...
Sarah Schafer, MD
Jun 16, 20202 min read
1,436 views


How to educate clinicians
Patients are often confused about how to advocate for better care. Because so many clinicians are not up to date with Sjogren’s,...
Sarah Schafer, MD
May 31, 20204 min read
1,492 views


Sjogren's neglect I - introduction
Understanding why Sjogren's is often overlooked and misunderstood can help patients better advocate for themselves.
Sarah Schafer, MD
Aug 27, 20192 min read
1,062 views


Words matter: problematic Sjogren's disease terms
Medical terms used to describe Sjogren's are often misleading, and reinforce dismissive attitudes about the disease.
Sarah Schafer, MD
Jul 19, 20194 min read
1,541 views


Neuropathy: Maybe it's all connected... Updated 09-19-2022
Do you have any of these? 1. Relentless, profound physical fatigue 2. Brain fog: Mental fatigue/cognitive changes 3. Dizziness or...
Sarah Schafer, MD
May 11, 20193 min read
10,586 views


Exploring Sjogren's
Exploring Sjogren's Episode 1 - What is Sjogren's?
Exploring Sjogren's Episode 2- Living with Sjogren's
Sarah Schafer, MD
May 9, 20191 min read
1,234 views


What are all those numbers in parentheses? Citations
Citations can be extremely useful for self-advocacy, especially when addressing misperceptions about Sjogren’s. What is a citation? You...
Sarah Schafer, MD
Apr 26, 20192 min read
1,448 views


Do you have dysautonomia?
Dysautonomia, or malfunction of the autonomic nervous system, is estimated to impact more than half of Sjogren's patients.
Sarah Schafer, MD
Apr 12, 20193 min read
13,242 views


Misperceptions about Classification Criteria
Many patients are told that they cannot have Sjogren's because they don't meet the Classification Criteria. This is simply incorrect....
Sarah Schafer, MD
Mar 12, 20192 min read
760 views


Misleading NYT Article
Earlier this month, I posted an online comment regarding this New York Times Article: He Thought He Just Had the Flu at First. Then His...
Sarah Schafer, MD
Jan 28, 20191 min read
799 views
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